Epileptic Boy Book Seizure Dog

Published: August 17, 2011

Epileptic Boy Book Seizure Dog, Evan Moss just entered quietly into the night. When they strike, seven years her parents give her medication to stop them – or risk of brain damage. But to do so, they must know where they occur. Lisa and Rob Moss live in fear of missing one.

The crises are so quiet that even though Rob and Lisa sleep in the next room with a baby monitor to listen, they cannot hear them, so Evan is sleeping in bed with them. “We go through life almost no well-rested and with a strong dependence on caffeine,” says Lisa Moss.

But a service dog, trained to detect attacks and alert the parents of Evan could help ensure that Rob and Lisa do not miss a crisis, and also allow Evan to sleep in a clean bed. The catch? A dog like that costs about $ 13 000.

To raise money for a dog of Evan, who has a genetic disease and epilepsy, the family, considered the usual options: a 5 km run, a dinner with a band, lemonade stands.

As almost an afterthought, they came up with the idea of?? Self-publishing a book of short Evan wrote in his application for the dog. Initially, they hoped, perhaps they could sell a modest 150 to $ 10 each. But Evan has now sold 10 times as many copies of page 26: “My dog?? Seizure” and counting. As it turns out, none of the profits from the sale of books needs to go towards the cost of the dog, because only donations exceeded $ 26,000 – more than twice what the Alexandria, Virginia, son Evan necessary for his dog. The thousands of extra dollars, plus the proceeds from the book, will make the difference between what the families of four other children and have raised the cost of their service dogs.

Not a drop of lemonade ever had to be sold.

A book signing on July 24 attracted about 650 people at a local café, and at one point ranked 125th Evan book sales among the millions of books on Amazon.

Evan, an increase of the second grader whose favorite of the school day, except perhaps the recreation was “Workshop of the writer,” is not confused by the attention.

“It feels pretty nice,” he said Thursday morning before his mother, Lisa, took him to day camp.

Evan’s dog will be trained by the four legs for nonprofit capacity and will be ready for the family to pick next June. It will be a poodle or a poodle mix, Lisa Moss said, because poodles are less likely to aggravate her allergy dog.

The theory is that dogs can pick up entry on the track due to a chemical change in the body that precedes a seizure, said Moss, who with her husband, runs the seizuretracker.com free website that helps families around the world to monitor their children and drug seizures.

Evan’s dog has not been selected by four legs, so the foam does not know how he will warn them of an impending crisis. Some dogs bark, others boost to parents, says Karen Shirk, founder of the nonprofit. “Every dog?? Has its own way to attract attention,” says Shirk.

However, Lisa Moss said, “It’s a really big task to put on an animal. At first, we are basically going to have a boy and a dog in our bed. At one point, Evan is back in his own bed with a dog. ”

Evan’s parents first recognized that it was a crisis when he was a month old, although Rob Moss said he could have had since birth.

Evan was diagnosed with a rare genetic disease called tuberous sclerosis complex, which causes benign tumors to grow in the brain and other vital organs such as kidneys. Because tumors in the brain, most patients also have epilepsy. At 4 years, Evan has been having 300 to 400 seizures a month, but after surgery to remove brain tumors, it has been seizure-free for two years before their return.

According to the National Institutes of Health, tuberous sclerosis affects 25,000 to 40,000 people in the United States and 1 million to 2 million worldwide. With most appropriate medical care, can expect to have a normal life expectancy.

Most cases occur as a result of a spontaneous mutation in one of the genes that cause disease when they are not transmitted from parent to child. But children can also inherit the disease from an affected parent if “it is possible that one of us, he,” Rob Moss said, noting that some people with mild cases are not diagnosed before the age adult. To be on the safe side, he added, big brother Evan, Aria nine years, would undergo genetic testing when she’s older.

Evan will not get her dog until next summer, but has already made plans to write “My Dog 2 Enter” after he gets his new companion.


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